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We just got a dementia diagnosis

What to do in the first month, and what can wait longer than you think.

Quick answer

What to do in the first month, and what can wait longer than you think.

Home›By Situation›We just got a dementia diagnosis

The first month after a diagnosis is mostly about slowing down. Very little has to be decided immediately, and some of what feels urgent is better decided in three months.

Short answer

What to do in the first month, and what can wait longer than you think.

What to do, in order

  1. Slow down. Very little has to be decided this month. Families who make housing decisions in the first weeks frequently make them twice.
  2. Get the specific diagnosis. Alzheimer's, vascular dementia, Lewy body and frontotemporal dementia progress differently and respond differently to medication. Lewy body in particular carries serious sensitivity to certain antipsychotics, which matters enormously for care planning.
  3. Do the legal work now, while capacity is clear. Power of attorney, medical power of attorney, directives. This window closes, and closing it turns straightforward decisions into court proceedings.
  4. Call AGE of Central Texas. 512-451-4611. The free early-stage memory loss program and CaregiverU courses exist precisely for this month, and most Austin families never hear about them.
  5. Understand what memory care will require later. In Texas it means an Alzheimer's certification on a Type B licence. Knowing that now saves you touring places that cannot legally take your parent later.

Questions Austin families ask

Can an Austin assisted living facility make my parent leave if their needs increase?

Possibly. If a Type A community can no longer meet your parent's evacuation or nighttime care needs, they may require a move to a Type B community. Improper transfer or discharge is exactly what a long-term care ombudsman handles. Call Capital Area at 512-916-6054 before agreeing to move.

Does Medicare pay for assisted living in Texas?

No. Medicare does not pay for assisted living room, board, or custodial care anywhere, including Austin. Medicare covers limited skilled nursing facility stays after a qualifying hospital admission, plus home health and hospice. Assisted living in Texas is paid privately, through long-term care insurance, or via Medicaid STAR+PLUS.

Does Texas Medicaid pay for assisted living?

Partially. The STAR+PLUS HCBS waiver covers assisted living care services but explicitly does not cover room and board, which comes from the resident's own income. You must meet nursing facility level of care, income under $2,982 monthly, and assets under $2,000, and usually wait on an interest list.

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